Blood and bone marrow resources

Beta thalassemia is an inherited blood disorder where the body produces less hemoglobin than normal.  

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Thalassemia International Federation 

The Thalassemia International Federation (TIF) is a non-profit, non-governmental organization founded in 1986 by a small group of patients and parents representing mainly National Thalassemia Associations in Cyprus, Greece, UK, USA and Italy. 

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NIH Genetic and Rare Diseases Information Center 

Summary, symptoms, diagnosis and resources for beta thalassemia.  

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Kids Health 

Information on beta thalassemia for parents.  

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Lymphomas are blood cancers that target the immune system. 

Leukemia and Lymphoma Society 

The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary nonprofit health organization dedicated to developing better outcomes for blood cancer patients, sponsoring life-saving research, providing critical support, education and resources to patients and their families and working to ensure patients have access to high quality cancer care. 

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American Cancer Society 

One of the country's largest and oldest volunteer health organizations, dedicated to eliminating cancer. 

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Lymphoma Research Foundation 

The Lymphoma Research Foundation is the nation's largest nonprofit organization devoted to funding innovative lymphoma research and providing people affected by lymphoma and healthcare professionals with free, up-to-date education about this blood cancer. 

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ACS non-hodgkin lymphoma overview 

An overview explaining Non-Hodgkin lymphoma.  

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Myelodysplastic syndromes (MDS) are bone marrow failure disorders. 

Myelodysplastic Syndromes Foundation 

The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. 

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NIH National Cancer Institute 

An overview of helpful information on myelodysplastic syndromes for patients. 

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Center for Nurses 

A resource to help you understand what myelodysplastic syndromes (MDS) are, how they occur and how they affect patients like yours. 

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Myelofibrosis is a chronic blood cancer in which excessive scar tissue forms in the bone marrow and impairs its ability to produce normal blood cells. 

MPN Research Foundation 

At the MPN Research Foundation, we’re committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF)—the group of blood cancers collectively known as myeloproliferative neoplasms. 

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MPN Advocacy & Education International 

MPN Advocacy and Education International is dedicated to providing the knowledge, support and resources patients will need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help. 

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AAMDS International Foundation 

The Aplastic Anemia & MDS International Foundation is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. The foundation provides answers, support and hope to thousands of patients and their families around the world. 

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Myeloma, or multiple myeloma, is a type of blood cancer which forms in plasma cells. 

American Cancer Society 

A helpful overview of multiple myeloma. 

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International Myeloma Foundation 

The International Myeloma Foundation conducts basic clinical and translational research to improve outcomes in myeloma, and to provide scientifically valid and critically appraised consensus opinions on the diagnosis and treatment of myeloma and related disorders. The IMF provides myeloma patient support and education though Patient & Family Seminars, an extensive library of print and digital resources and a trained InfoLine staff. 

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Multiple Myeloma Research Foundation  

A patient-founded nonprofit organization, the Multiple Myeloma Research Foundation (MMRF) is a world-recognized pioneer in precision medicine and cancer research. The mission of the MMRF is to find a cure for multiple myeloma by relentlessly pursuing innovation that accelerates the development of next-generation treatments to extend the lives of patients. 

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Mayo Clinic 

An overview of multiple myeloma with links to more in-depth information. 

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Myeloma Central 

Myeloma Central is your hub for basic information about multiple myeloma. Our goal is to connect people affected by multiple myeloma with helpful information and resources. 

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Myeloma advocacy research flashcard 

Learn about the role of advocacy organizations in providing support for patients with cancer. 

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